Feel better prepared when your child moves on from child to adult services

3 mins read

Monday 8 June 2020

New research published today by Contact and consortium partners Carers UK; National Network of Parents Carer Forums (NNPCF) and National Development Team for Inclusion (NDTi), reveals that the vast majority of parent carers (67%) feel that their own outcomes weren’t considered during transition – the term commonly used to denote a young disabled person’s move from child to adult social and health care services. 

When asked about how informed they felt about key areas of the transition process such as health and wellbeing, education options and good quality care for example: 

  • 70% rated housing and supported living as the area they were least informed about and 64% said personal skills and development, for example independent living.
  • 85% said there were gaps in services (service not available or only partly available) with respite and day services or activities, health and mental health services and social care being the main services identified. 

The research alongside details of the work behind Contact’s new Preparing for Adult Life webpages and Common Questions Tool can be found in the consortium’s Transition Project report.

You can also read a shorter executive summary of the report and the findings of Contact’s parent carer research which helped inform this piece of work.

Gail Walshe, Director of Participation at Contact says: “Many parent carers tell us they don’t know when they need to start thinking and planning for their son or daughter’s adult life. It’s a crucial stage in their family’s lives but the overriding message is that they ‘don’t know what they need to know’ and often feel they are left to try and navigate what can be a complex system alone. 

“We used what parent carers told us they needed to develop our new Preparing for Adult Life webpages which brings together information about key aspects of the transition from child to adult support services for families with disabled children in the one place for the first time. Our consortium will also seek ongoing dialogue with The Department for Health and Social Care (DHSC), who funded this work, to ensure the challenges and experiences of parent carers highlighted in our report are prioritiesd so the improvements needed can be achieved.”

Tell us what you think

Take a look at our new Preparing for Adult Life online information covering topics such as: making a plan and making decisions; benefits & money, wills & trusts; education, health & social care; getting a job, independent living & housing and growing up, sex & relationships.We’d love to hear what you think about our new webpages. Our aim is that they contain clear information about topics you are concerned about as your child moves from child to adult services. 

You can tell us your views by filling in this short questionnaire.

Parents in Northern Ireland, Scotland and Wales

Because this work was funded by the DHSC, a department of the English government, the information we provide has been written using English guidance and law. 

If you live in Scotland, visit Contact Scotland’s transition microsite Talking About Tomorrow

If you live in Northern Ireland, you can find information on NIdirect

If you live in Wales, visit gov.wales where you can find information on person-centred reviews.