Resource library


You can search for a keyword or use filters to browse our library. Resources are organised by:

  • Subject (for example education or benefits)
  • Type (for example reports or newsletters)
  • Nation and language

Our parent guides and factsheets

We produce a series of guides and factsheets on all aspects of raising a disabled child.

You can browse and download the parent guides in our library or download a publications list [PDF].

  • Factsheet: GP annual health checks for children with learning disabilities

    This factsheet is for parents of a child or young person with a learning disability. It has information on GP learning disability registers and annual health checks, why they are important and how you can support your child or young person to access the services they are entitled to.

    203kb

  • Parent carer participation: East of England report on improving patient pathways for adults with learning disabilities or autism

    How to make hospitals more accessible for people with learning disabilities or autism.

    846kb

  • Parent guide: Disability living allowance - claiming the higher rate mobility component for children with learning disabilities and autism spectrum disorders

    How children with learning disabilities and autism spectrum disorders may qualify for the Disability Living Allowance (DLA) mobility component at the highest rate - one of our benefits guides.

    228kb

  • Parent carer participation: Learning Disability Annual Health Checks

    Presentation to support Webinar recording of Learning Disability GP Annual Health Checks for over 14’s – why they are important, who are they for and how you can ask for one.

    4mb

  • Parent carer participation learning resource: Managing Conflict

    Key principles to help manage conflict within parent carer forums, or with other organisations.

    100kb

  • Parent carer participation:case study Birmingham children's hospital -Improving the hospital experience

    Staff at Birmingham childrens hospital worked with parents, young people and the voluntary sector to improve the experience of visiting hospital for children and young people who have a learning disability and their families.

    209kb

  • Questions and support for parent carer forums: Responses from the national parent carer participation learning event

    Support for parent carer forums: Responses from the national parent carer participation learning event from Department for Education and Department of Health.

    334kb

    • Parent guide: Concerned about your child

      A description of the roles of professionals who maybe involved in your child's care.Who can help if you have concerns about your child's speech, feeding, co-ordination, teeth, toilet training, learning, behaviour or sleep.

      316kb

    • Parent carer participation: Case study - Kirklees parents in the redesign of a mental health service for young people (CAMHS)

      Kirklees commissioned a new child and adolescent mental health service (CAMHS) for children with learning disability and mental health issues, designed around what families said would help.

      202kb

    • Parent carer participation learning resource: The law

      Links to information on data protection and legal duties of local authorities and health bodies, referenced in video on the law by Steve Broach

      98kb