How is our medical information checked?
The information on each medical condition is reviewed by a medical expert in the field, usually consultant level or equivalent. With some very rare disorders, there may only be a few experts that know a significant amount of information about the condition. We contact the relevant experts for each condition and invite them to review and update our information as part of a rolling programme.
Details of authorship appear at the bottom of each page along with the author's position and their affiliation.
Browse our A-Z list of conditions.
For non-medical information or general information the article may be written by the in-house editors. This is stated clearly in the article.
If you can't find a medical condition
If a medical condition is not in our A-Z list, we may still be able to help. We have access to a database with more than 2,000 conditions with links to further information. We will only pass on information written and verified by medical professionals.
Please contact our freephone helpline on 0808 808 3555 for more information. Nobody within the organisation is medically qualified, so unfortunately we are unable to give medical advice.
Although great care has been taken in the compilation and preparation of all medical information to ensure accuracy, Contact cannot accept responsibility for any errors or omissions. Articles written by Contact are researched and written using peer-reviewed and evidence-based medical information by the researcher. All medical information written by us is also reviewed and approved by a medical expert.
The same medical conditions can affect children in different ways and some information sources may give the worst-case scenario. Any medical information by Contact is for education/information purposes and is not designed to replace medical advice.
You should share any information you find with a medical professional delivering your care to see how it applies to you. Any links to external websites have been carefully selected, but are provided without any endorsement of the content of those sites.
Information last reviewed January 2020 by Rachel Gibson, Rare Conditions Information Officer, Contact.