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Spina Bifida

If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can also browse our range of parent guides on aspects of caring for a disabled child in our resource library.

To meet other parents see support groups below or meet other parents online on our online community.

Please see below for reliable medical information on Spina Bifida produced by alternative providers.

NHS Choices

Although alternative links have been selected with great care, Contact cannot accept responsibility for any inaccuracies or errors. Alternative information providers comply with the Information Standard and give details of their quality control procedures on their website, which includes review of information by a qualified medical professional.

Listen to more about this condition

A mother discusses her experience of having one of her twins diagnosed with Spina Bifida and Hydrocephalus.

Listen to the podcast

The views expressed in this podcast are for information purposes only. The material is in no way intended to replace professional medical care or attention by a qualified practitioner. Condition symptoms may vary in type or severity amongst individuals. This podcast is to demonstrate the personal views and experience of this family only. For approved medical information about this condition see the Contact website or contact your doctor.

Is there support?


Tel: 01733 555 988
Email: via website

The Association is a Registered Charity in England and Wales No. 249338. It provides information and support to individuals with hydrocephalus and/or spina bifida and their families and carers. It offers specialist services and has regional teams across England, Wales and Northern Ireland. 

Group details last reviewed July 2018.

Spina Bifida Hydrocephalus Scotland

Helpline: 03455 211 300

The Association is a Registered Charity in Scotland No. SC013328. It provides information and support to anyone affected by spina bifida, hydrocephalus and related conditions. They offer a Family Support Service which includes intensive support for families with new born babies. 

Group details reviewed July 2018.