Resource library

Browsing our library

You can search for a keyword or use filters to browse our library. Resources are organised by:

  • Subject (for example education or benefits)
  • Type (for example reports or newsletters)
  • Nation and language

Our parent guides and factsheets

We produce a series of guides and factsheets on all aspects of raising a disabled child.

You can browse and download the parent guides in our library or download a publications list [PDF].

Ordering and buying print copies of our guides

If you are a parent and want a free print version of any of our parent guides, please contact our freephone helpline on 0808 808 3555 or

If you are a professional then we ask that you make a small payment of £1 for each of our guides. Select 'order print version' next to any parent guide that is on sale. Your basket will appear at the top of the page above the menu bar.

  • Parent carer participation: Managing your parent carer participation grant 2019-20 final

    Managing your Parent Carer Participation Grant and other useful tips to help you manage the day to day running of your forum


  • Parent carer participation: Annual Review 2017-18

    A year in the life of parent carer forums - and celebrating 10 years of supporting forums


  • Parent carer participation: Terms and responsibilities of grant award - parent carer participation grant 2018-19

    Read the following information before submitting your parent carer participation grant application, as it details the terms on which the grant has been awarded. This includes your forum’s responsibilities in accepting the grant.


  • Parent carer participation: Case study Peterborough Family Voice working with LINk

    How the parent carer forum in Peterborough improved the patient experience for disabled children while in hospital and worked with other community groups through their LINk to improve access to hydrotherapy for children and adults.


  • Parent carer participation: 2019 National Contact and NNPCF Conference Booking Form

    Booking information and frequently asked questions for the 9th National Contact and NNPCF Parent Carer Participation Conference. Including information on who the event is aimed at, how to book your place, information about travel and accommodation etc.


  • Parent carer participation: Case study Addenbrooke hospital passport

    A case study on parent carer forum who worked with Addenbrooke hospital to improve the experience of visiting the hospital for disabled children.


  • Parent carer participation: Terms and responsibilities of grant award - parent carer participation grant 2019-20

    Terms and responsibilities of grant award - parent carer participation grant 2019-20


  • Parent carer participation: Improving wheelchair and transport services Southend- a case study

    Parent carer forums worked with the NHS to develop a wheelchair service that met family’s needs and help monitor the service to make sure it met families needs.


  • Parent carer participation: Case study Shropshire,Telford and Wrekin new hospital build

    How two parent carer forums are working with architects and planners to make sure the new hospital meets the needs of disabled children.


  • Parent carer participation: Payments to Parent Carers

    Payments to Parent Carers – a guide for forums to the issues that parent carer forums need to consider when reimbursing Parent Carers’ expenses, remunerating parent carers for their time including offering honorariums or gifts as a thank you. The guide was kindly produced by the Low Income Tax Reform Group (LITRG) specifically for parent carer forums.