Resource library

Browsing our library

You can search for a keyword or use filters to browse our library. Resources are organised by:

  • Subject (for example education or benefits)
  • Type (for example reports or newsletters)
  • Nation and language

Our parent guides and factsheets

We produce a series of guides and factsheets on all aspects of raising a disabled child.

You can browse and download the parent guides in our library or download a publications list [PDF].

Ordering and buying print copies of our guides

If you are a parent and want a free print version of any of our parent guides, please contact our freephone helpline on 0808 808 3555 or

If you are a professional then we ask that you make a small payment of £1 for each of our guides. Select 'order print version' next to any parent guide that is on sale. Your basket will appear at the top of the page above the menu bar.

  • Parent guide: Living with a rare condition

    Guide for parents whose child has a rare condition, including why rare conditions are sometimes hard to diagnose, how to access medical information, help and support, and a section on getting involved in research.


  • Parent carer participation: Memorandum of Understanding (MOU)

    Memorandum of Understanding (MOU) – a guide to assist parent carer forums.


  • Parent carer participation : Examples in health settings guide

    This is a summary of some successful attempts by pediatricians and their health and social care colleagues to consult with parents of disabled children in order to improve the ways they deliver their services


  • Parent guide: Relationships and caring for a disabled child

    Information and ideas for parents of disabled children about looking after their family and couple relationships


  • Parent guide: When your child has additional needs

    Comprehensive guide to help and support for parents of a disabled child, summarising the type of help available.


  • Parent carer participation: Contact a Family and NNPCF newsletter no 19

    Latest news from Contact a Family and the National Network of Parent Carer Forums (NNPCF) including: Code of Practice, Children and Families Act, Paediatric Disability Data Project, Grants, Stockton United For Change, Cornwall Parent Carer Council, North East Lincolnshire Parent Participation Forum, New Publications from Participation & Health, SEND Reforms Survey, POINT Oldham, Parliamentary Inquiry on childcare for disabled children, Parent Carer Guide to the Code of Practice, Pathfinder Champions, Counting the Cost 2014, Webinar on Participation and Health


    • Support for parent carer forums: Parent carer forums handbook

      Includes information on all aspects of running a forum including getting started, policies, governance, reaching parents, finances including paying parents, managing conflict and working with local authorities & health to improve services


    • Parent guide: Feeding and eating

      Why disabled children may have problems with feeding/eating with practical ideas on what helps.


    • Parent guide: Fathers

      Practical information for fathers of disabled children, with shared experiences of other fathers.


    • Parent guide: Childcare for families with disabled children - how to access free childcare for two to four-year-olds

      A guide on your rights to free childcare for disabled children, with template letters on how to challenge decisions if your access to free childcare has been denied.