If your forum requires additional support in engaging your local health partners, contact our parent participation adviser in your region or our strategic health lead: firstname.lastname@example.org
Publications useful for engaging with health
- Introduction to the NHS [PDF] - a briefing that provides an overview of the main organisations and jargon, with guidance on how forums can start to influence this locally.
- NHS Five Year Forward View [PDF] - an overview of the NHS plan, where the majority of the 'transformation' programmes stem from - the driving force behind much of the current change in the NHS. It also covers sustainability and transformation plans.
- NHS constitution [PDF] - the NHS constitution sets out the principles and values of the NHS and is where the 'duty to involve' comes from. It sets out rights to which patients, public and staff are entitled, and pledges which the NHS is committed to achieve.
- Patient and public participation in commissioning health and care: statutory guidance for CCGs and NHS England [PDF].
- Involving people in their own health and care: statutory guidance for clinical commissioning groups and NHS England [PDF] - also aimed at engaging parent carers in their children's care and treatment decisions.
- Supporting pupils with medical conditions at school [PDF] - statutory guidance about the support that pupils with medical conditions should receive at school.
- Briefing on The Children & Families Act 2014 for health practitioners - some of the key issues for health practitioners in implementing the reforms from the Council for Disabled Children.
- Requirements to provide health advice within six weeks [PDF] -a factsheet from the Council for Disabled Children.
- Designated Medical/Clinical Officer Handbook -a resource from the Council for Disabled Children.
Resources supporting work with GPs
- Make GP practices more welcoming [PDF] - practical suggestions for GP practices to make it easier for disabled children to visit their GP.
- Health services for disabled children and young people [PDF] - explains roles of different health professionals and sources of information to assist health professionals in coordinating care.
- Poster - GP's role in coordinating care [PDF] - can be used to explain to CCGs why families with disabled children are falling through a gap in services.
- Read how the parent carer forum in Rutland met with GP practice managers [PDF], which led to improvements for disabled children and young people visiting their GP.
Ways to understand parent carer experiences you can adapt and use
- Health survey [PDF] - questionnaire used to gather the experiences of parents of disabled children accessing local health services.
- 'Speed dating' form [PDF] - useful method to help managers hear first hand from parents their experience of services.
- Listening to parents' experiences [PDF] - an easy way to gather people's experiences of a service at a focus group and identify how it could be improved.
Resources supporting participation in hospital settings
- Read how parents worked with hospitals to improve the experience for disabled children in Bristol [PDF], Cambridge [PDF], Birmingham [PDF] and Manchester [PDF].
- Autism assessment [PDF] - to identify what a child with autism might find difficult when visiting hospital.
- Computerised hospital passport - Bristol Children's hospital.
- 'Transforming Care for children and young people with learning disabilities, autism or both', presented by Mary Busk, NNPCF Steering Group member for London and Sue North, the children's social care and education adviser for the Transforming Care programme. Download the presentation from the Webinar'
- 'First steps towards understanding and working with the health system.' With Contact associate Anna Gill and Rachel Trueman from South Gloucestershire Parent Carer Forum, this webinar includes: a bird's eye view of how the health system is structured; an introduction to commissioning within the health system; identifying key levers for change within health and much more. Download the presentation from the day along with further resources, information on marketing your forum, an example report from South Gloucestershire forum and a Q&A document.
- 'Improving health services for disabled children'. View the presentation associated with this webinar. Read the Q&A from this session.
- ' Participation and Health - Next Steps'. View the presentation associated with this webinar.