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Huntington's disease

If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can also browse our range of parent guides on aspects of caring for a disabled child in our resource library.

To meet other parents see support groups below or meet other parents online at community.cafamily.org.uk

Please see below for reliable medical information on Huntington's disease produced by alternative providers.

NHS Choices
www.nhs.uk/conditions

Although alternative links have been selected with great care, Contact a Family cannot accept responsibility for any inaccuracies or errors. Alternative information providers comply with the Information Standard and give details of their quality control procedures on their website, which includes review of information by a qualified medical professional.

Is there support?

Huntington's Disease Association

Tel: 0151 331 5444
Email: info@hda.org.uk
www.hda.org.uk

The Association is a Registered Charity in England and Wales No. 296453. It provides information and support to families affected by Huntington's disease, and runs local branches and groups throughout the UK.

Group details last updated June 2016.

Huntington's Disease Association of Northern Ireland

Tel: 028 2177 1812
Email: info@hdani.org.uk
www.hdani.org.uk

The Association is registered with the Inland Revenue under Reference No. XT1408, established in 1976. It offers support, information and care for families affected by the condition. It also promotes research and knowledge about the condition. It has information available and a dedicated youth officer. The Association responds to the needs of more than 240 families.

Group details last updated October 2015.

Scottish Huntington's Association

Tel: 0141 848 0308
Email sha-admin@hdscotland.org
www.hdscotland.org

The Association is a Registered Charity in Scotland No. SC010985. It provides information and support for families affected by Huntington's disease (HD). The Association offers nine specialist HD services in Scotland, and has three specialist youth advisors. It supports a network of family branches which are run by family members for family members and provide information and peer support. 

Group details last updated June 2016.

Talk to other families about your child's condition

Our online community

Visit our online advice and support or read all about diagnosis.


You can also call us if you need information or advice on any aspect of caring for a disabled child. Monday to Friday, 9.30am to 5pm.


0808 808 3555 or helpline@contact.org.uk