Alfie Milne Lymphangiomatosis Trust
The Trust is a Registered Charity in Scotland No. SC043165. The trust offers information and support for patients and families with Lymphangiomataosis or Gorham's disease. They aim to raise awareness of the conditions, promote opportunities for research and to educate medical professionals, patients and family members about the conditions. The Trust also offers a quarterly newsletter, closed Facebook groups and links with partner organisations in Europe and the USA.
Group details added May 2018.