Maffucci and Olliers Association
The Association, established in 2013, aims to raise awareness and provide information and support on Maffucci Syndrome and Ollier's Disease. The website has detailed information, parent stories, a members' area, and details of research and fundraising opportunities. The association also organises an annual conference for individuals, families and professionals to attend.
Group details last updated March 2015.
Olliers Global Support
Olliers Global Support was established in 1999. It offers information and support, and the opportunity to contact other families affected by Olliers disease and Maffucci syndrome. The Organisation is in contact with orthopaedic and plastic surgeons in the UK and abroad. It has two members-only Facebook support groups: Olliers & Maffucci Global Support and parents, and Olliers Owls and Maffucci Meerkats for children and young people.
Group details last updated April 2019.