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Tuberous Sclerosis Complex

Also known as: Tuberous Sclerosis

If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can also browse our range of parent guides on aspects of caring for a disabled child in our resource library.

To meet other parents see support groups below or meet other parents online on our online community.

Please see below for reliable medical information on Tuberous Sclerosis Complex produced by alternative providers.

NHS Choices
www.nhs.uk/conditions

Although alternative links have been selected with great care, Contact cannot accept responsibility for any inaccuracies or errors. Alternative information providers comply with the Information Standard and give details of their quality control procedures on their website, which includes review of information by a qualified medical professional.

Is there support?

Tuberous Sclerosis Association UK

Email: via website
www.tuberous-sclerosis.org

The Association is a Registered Charity in England and Wales No. 1039549. It provides information and support to anyone affected by Tuberous Sclerosis Complex. The Association has a team of advisors across the UK who offer individual and family support.

Group details last updated November 2017.

Talk to other families about your child's condition

Our online community

Visit our online advice and support or read all about diagnosis.


You can also call us if you need information or advice on any aspect of caring for a disabled child. Monday to Friday, 9.30am to 5pm.


0808 808 3555 or helpline@contact.org.uk