Tel: 020 7831 0883
Email: via website
SWAN UK (Syndromes Without A Name) is an initiative run by the charity Genetic Alliance UK to provide information and support to families of children with undiagnosed genetic conditions. It offers an online forum, family fun days and local meet ups, and works with healthcare and other professionals to highlight the challenges faced by families of children with undiagnosed genetic conditions.
Group details last updated January 2017.