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Join our parent advisory group for challenging behaviour project

Friday 1st February 2019

Are you interested in joining our parent advisory group for a pioneering research project about challenging behaviour support for parents with young disabled children?

ABOUT THE PROJECT

We are excited to be working with University College London (UCL) and various hospitals on a research project on challenging behaviour.

Stepping Stones Triple P (SSTP) is an intervention or therapy for parents of young children with learning disabilities and challenging behaviour. It is not yet offered through the NHS, so the project aims to find out (through a clinical trial) if it can make a difference. The results will be used to decide if the intervention should be offered to more families through the NHS.

The intervention is being tested in four areas across North East England, North and South London, and Blackpool.

ABOUT THE PARENT ADVISORY GROUP

Contact has set up a Parent Advisory Group to ensure parent involvement through the project. The group has been running for about a year with 3 or 4 parents attending and we'd love to have more on board.

You'll attend (or join by phone) four-six meetings per year based in London, each lasting around two hours. We will pay for travel, refreshments and childcare, and you'll receive a £20 voucher for each meeting you attend. 

The next meeting is on Friday 29 March,1.30 - 4pm in London

WHAT THE PARENTS SAY

Nikki from Lancashire is on the trial's parent advisory board. Nikki cares for her 15 year old daughter Antonia, who has an incredibly rare chromosome deletion that has caused her chronic developmental delays and behavioural issues.

Nikki says:"A research project like this one, which aims to intervene early and give parents strategies for coping with and managing behaviour, is fantastic. I am delighted to be involved with advisory group and very hopeful that the future for many families could be changed for the better."

HOW CAN I JOIN THE PARENT ADVISORY GROUP?

Please email una.summerson@contact.org.uk

Please provide a short description about you, your family and why you are interested in joining the advisory group.

WANT TO TRY THE COURSE

  • Does your child have delays in development and challenging behaviour (e.g. screaming, hitting themselves or others, breaking and damaging things, not listening to you)?
  • Is your child aged 30-59 months with a learning disability?

One parent who recently completed the course said: "It has been so beneficial to me and my family. The strategies I have learnt has built my confidence in a way that has helped my child and my relationship "

To find out more about getting involved in the research please email epicc-id@ucl.ac.uk