Together at 40 Awards: Recognising the amazing things young people with rare conditions do
Thursday 4th July 2019
Our Together at 40 Awards are only four days away! Over the last fortnight we've been taking a look at some of our spectacular finalists.
Cameron Alderman from Bristol has been shortlisted in our We Care about Rare category, recognising a child or family with a rare condition and how they champion being rare.
The six-year-old was nominated by mum Carla Golledge and friends/family Hannah Malpass and Denise Hurst.
Cameron was born with a rare genetic disorder called Norrie Disease, which has caused him to be blind and have progressive hearing loss. Despite all the challenges he faces daily, he has an unforgettable smile and the most radiant personality. Carla documents their journey on a Facebook page - Cameron's smile @CamSmile - to raise awareness of Norrie Disease and to give hope to other parents and families.
Hannah and Denise told us: "He has overcome so many challenges in his short life and yet he battles on. He has fought all the odds stacked against him and learnt to walk independently and bounce on his trampoline. Despite so many trips to hospital and medical appointments, he has the most wonderful smile which warms our heart".
Cameron's mum Carla added: "Through our Facebook page, Cameron has taught so many children, adults, parents and professionals about Norrie Disease and about differences in the world. I feel he has helped give other parents hope who are just starting out on this journey."
Shortlisted families are invited to a very special awards ceremony and reception at the Members Dining Room at the Palace of Westminster, hosted by Radio 4 Woman's Hour presenter Jane Garvey on July 8 2019, where the winners will be announced.