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Join a parent advisory group for challenging behaviour project

Thursday 18th May 2017

Are you interested in joining a parent advisory group for a pioneering new project about challenging behaviour support for parents with young disabled children?

About the project

Stepping Stones Triple P (SSTP) is an intervention or therapy for parents of children with learning disabilities and challenging behaviour.  It is not yet offered through the NHS, so the project aims to find out (through a clinical trial) if it can make a difference. The results will be used to decide if the intervention should be offered to more families through the NHS.

University College London is leading the project. The intervention (SSTP) will be delivered in four areas across England (Great Ormond Street Hospital London, Blackpool, Newcastle, and the Evelina London Children's Hospital).

The study is called EPICC-ID - Evaluation of Parent Intervention for Challenging Behaviour in Children with Intellectual Disabilities. It will take place over four years.

About the parent advisory group

Contact a Family is setting up a Parent Advisory Group to ensure parent involvement through the study. We'd love to have you on board.

You'll attend (or join by phone) four-six meetings per year based in London, each lasting two hours. (We will expect participants to attend 75% of group meetings.)

We will pay for travel, refreshments and childcare, and you'll receive a £20 voucher for each meeting you attend. 

How can I join the parent advisory group?

Please email una.summerson@cafamily.org.uk

Please provide a short description about you, your family and why you are interested in joining the advisory group.