New Warm Home Discount Scheme rules in England and Wales The Warm Home Discount Scheme rules have changed in England and Wales for winter 2022/23. The scheme now operates differently than before. Families eligible for the Warm Home Discount scheme...
Spinal Muscular Atrophy Background Spinal Muscular Atrophy (SMA) is a rare, genetic neuromuscular condition causing progressive muscle wasting (atrophy) and weakness leading to loss of movement. Approximately one in every 10,000 babies worldwide are born with a Type...
Viral infections post-Covid: a GOSH doctor’s advice to parents of disabled children Last week we hosted yet another popular Facebook Live with respiratory paediatrician Dr Martin Samuels, who spent an hour answering more than 120 questions and comments from parent carers about...
Coeliac disease Background Coeliac disease affects the small intestine and is due to sensitivity to gluten, which is a protein found in wheat. Similar proteins are found in rye, barley and, to...
Charlie the Chatbot Hi, I’m Charlie the Chatbot Have you seen this picture pop up on your screen when you’ve been looking at our website recently? Meet Charlie the Chatbot, the latest addition...
Raynaud’s Phenomenon Background Raynaud’s phenomenon occurs when blood vessels in the extremities have a tendency to narrow in response to cold or emotional stress. It leads to colour changes in the skin...
Watch our Free School Meals webinar You can now rewatch our Free School Meals webinar, hosted as part of the parent-led campaign, founded by Natalie Hay, to stop disabled children missing out on free school meals....
Exclusive FREE workshop for HemiHelp parent carers Exclusive FREE workshop for parent carers You’re invited to our free online workshop on Wednesday 27 September, 10-12, aimed at parents concerned about their child’s anxiety. This workshop is exclusive...
Money Matters for parents of young children: Free workshop for parent carers Money Matters for parents of young children: Free workshop for parent carers It costs more to raise a child with additional needs so financial help can make a real difference...
Parents of clinically vulnerable children voice concerns over lifting of restrictions today in England Parents of clinically vulnerable children have told us of their concerns over restrictions being lifted in full today in England. From today: It will not be a legal requirement to...
Wolfram syndrome Also known as: DIDMOAD; Diabetes Insipidus; Diabetes Mellitus; Optic Atrophy Background Wolfram syndrome is a rare and complex genetic condition, which is sometimes referred to as DIDMOAD (diabetes insipidus, diabetes mellitus,...
Social care assessments for disabled children and parents: Your Top 5 questions Our helpline advisers ran a busy Q&A session in our Facebook group last week for families who were new to the social care assessment process in England. They answered nearly...
Toilet training children with additional needs and disabilities – CPD-accredited Introduction All children learn to use the potty or toilet at a different stage in their life. Most children start to show an interest in moving on to a potty...
Occupational therapy Early learning skills As children grow they acquire all sorts of practical skills. They learn self-help skills such as feeding and dressing themselves, using the potty and the toilet. Through...
Lead Practitioner – Social Care Adviser Lead Practitioner – Social Care Adviser Your role The role sits within our London Family Support team. The new role of lead practitioner for social care is an exciting opportunity...
Information Officer, Wales | Swyddog Gwybodaeth, Cymru Information Officer, Wales | Swyddog Gwybodaeth, Cymru Information Officer, Wales Contract: Fixed Term Contract until 22 April 2027 Hours: 21 hours per week Salary: : £32,618 pro rata Location: Home-based,...
Isodicentric 15 Also known as: idic (15) Background Isodicentric 15 (idic (15)) is a rare chromosomal disorder (see the chromosome abnormalities section in Patterns of Inheritance). Common features include hypotonia, seizures and...
Kidney disease If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...