What should you do if you receive a Universal Credit managed migration notice? – podcast transcript What should you do if you receive a Universal Credit managed migration notice? – podcast transcript Hi. My name’s Derek and this podcast is about what you should do if...
Alexander disease Also known as: Alexander Leukodystrophy; AxD Background Alexander disease (AxD) is an extremely rare genetic disease belonging to a group of conditions called leukodystrophies. It involves degeneration of the brain’swhite...
C1 Esterase Inhibitor Deficiency Also known as: C1 Inhibitor Deficiency; Hereditary Angioedema; Hereditary Angioneurotic Oedema What is C1 inhibitor deficiency? C1 inhibitor deficiency results from a genetic change to the C1 inhibitor gene on...
My hemiplegia makes me who I am “My hemiplegia makes me who I am” Thomas Roberts tell us more… 30-year-old Thomas Roberts lives in London with his wife Siena. He’s had hemiplegia since birth, which makes the...
Applications open for free bus travel for 5-21 year olds in Scotland Children and young people in Scotland aged 5-21 can now apply for a National Entitlement Card granting free travel on registered bus services across the country. You can read more...
Gorlin syndrome Also known as: Basal Cell Nevus syndrome; Gorlin-Goltz syndrome; Nevoid Basal Cell Carcinoma syndrome Background Gorlin syndrome is an inherited predisposition (increase in risk) to develop multiple basal cell carcinomas...
Physiotherapy What will physiotherapy do? In the case of a child with hemiplegia, the specific aim of physiotherapy will be to make them as physically two sided as possible. The physiotherapist...
Idiopathic Intracranial Hypertension Also known as: Benign Intracranial Hypertension; Pseudotumour Cerebri Background Idiopathic intracranial hypertension (IIH) is a condition where intracranial pressure ((ICP) the pressure of fluid in the head) is raised. This...
Raising a formal complaint template letter Our experts have put together a template letter for parents to fill in when raising a formal complaint about bullying. It details the correct information to include. Simply copy and...
New Podcast to help spot winter virus RSV in young ones Our health lead Amanda Elliot has made a new podcast about winter virus RSV that can lead to the serious chest infection, bronchiolitis in babies and toddlers. In our latest...
Get our updates straight to your WhatsApp Our news & views section is where you can find the latest stories from the child disability sector, from changes to benefits and tax credits to consultations about the education...
Orthopaedic surgery When might be surgery be an option? Hemiplegia can often affect the way children’s affected limbs grow, particularly the way muscles develop and, to a lesser extent, bones too. This...
Osteogenesis imperfecta (brittle bone disease) Brittle bone disease or osteogenesis imperfecta (OI) is a genetic condition that causes abnormality in collagen protein that the body needs for bones as well as other structures such as...
Apply this month for free childcare hours for two-year-olds Parents in England eligible for 15 free childcare hours for their two-year-olds from 1 April 2024 are advised to apply before 28 February to ensure they get the offer in...
Self-Employment Income Support Scheme – applications for 4th grant now open People whose self-employment remains affected by Covid-19 are now being invited to apply for the fourth grant under the government’s Self Employment Income Support scheme (SEISS). This fourth grant covers...