Fetal Alcohol Spectrum disorders Also known as: Fetal Alcohol Effects; Fetal Alcohol syndrome Background Fetal Alcohol Spectrum Disorders (FASD) is a diagnosis which describes a range of features from the severe end of the...
Healthcare in Wales The structure of healthcare in Wales NHS Wales delivers services through seven local health boards responsible for planning, delivering and commissioning NHS services in their areas. They are also responsible...
What should you do if you receive a Universal Credit managed migration notice? – podcast transcript What should you do if you receive a Universal Credit managed migration notice? – podcast transcript Hi. My name’s Derek and this podcast is about what you should do if...
Summer activities for disabled children: your top 5 questions answered All children need the chance to play, but many parent carers find it difficult to access suitable play schemes, activities and short breaks for their disabled child over the summer...
School Action & School Action Plus (Wales) This advice applies in Wales only. Read information for families in England, Northern Ireland or Scotland. Changes to the education system in Wales A new system of support for children...
Counting the Costs Counting the Costs Counting the Costs is our flagship survey run every two years to get a picture of the finances of UK families with disabled children. These surveys drive...
DLA and Admin Support Assistant DLA and Admin Support Assistant Contract: Fixed term contract until 31st March 2024 Salary: Full time salary £ 26,793 – £28,203 (£7,655 – £8,058 pro rated) Hours: 10 hours per...
Helpline Parent Adviser – Education The Education Helpline Adviser provides specialist education advice by telephone, e-mail, and social media to families with disabled children in the UK.
Klinefelter syndrome Klinefelter syndrome was first described in 1942 by Dr Harry Klinefelter and colleagues. It is a chromosomal abnormality that only occurs in 1 in 500 to 1,000 newborn boys. A...
Contact calls for increase in the Disabled Facilities Grant Contact would like to see an increase in the amount of money disabled households can get towards adapting their homes. Currently families can claim up to £30,000 through the Disabled...
Multiple Sclerosis If your child is affected by a disability or medical condition we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...
Stigma and discrimination Key statistics Challenging the stigma around benefits take up, 2014 [PDF] Based on more than 3,500 responses to our Counting the Costs campaign, this research looks at whether the negative...
Tribunal appeals If you disagree with a decision made by the local authority relating to your child’s special educational needs, you can appeal to an independent body called the First Tier Tribunal...
Raising a formal complaint template letter Our experts have put together a template letter for parents to fill in when raising a formal complaint about bullying. It details the correct information to include. Simply copy and...
Contact is helping rare families on Rare Disease Day Today, Thursday 29 February, is Rare Disease Day 2024, the globally-coordinated movement on rare diseases (conditions). We support Rare Disease Day each year. The event is as an opportunity to...
Fabry disease Also known as: Anderson-Fabry disease; Angiokeratoma Corporis Diffusum; Haemorrhagic Nodular Glycolipid Lipidosis Background Fabry disease is a rare genetic metabolic condition. It is caused by changes (mutations) in the GLA...
Anaphylaxis If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...
Ways that schools can deal with bullying Schools have a legal duty of care towards their pupils and a responsibility to prevent bullying amongst them. Schools can deal with bullying in different ways. What must schools do...