Local support groups
Parents talk about how meeting other parents helped them care for their own child.
Parent support groups are a great way to meet other parents for practical and emotional support. Most support groups are set up and run by parents and carers of children with additional needs. Some professionals and organisations, particularly children centres, run their own groups.
National support groups are usually for parents of children with specific conditions. National groups offer support in a range of ways, which might include:
- Providing good quality medical information.
- Creating opportunities to get in touch with other families of children with the same condition.
- Running family events.
- Producing newsletters.
Search for your child's condition on our website to see if there's a national support group. If your child's condition is not listed, there may be groups that our freephone helpline can put you in touch with.
Local groups cater for parents who live in the same area whose children might have a variety of different disabilities or the same condition. Many parents whose child doesn't have an official diagnosis are members of local support groups.
We started life as a self-help group for parents, and from our 30 years' experience as an organisation we know that parents can be the best support for one another.
Why join a local support group?
Groups generally offer:
- Opportunities to socialise.
- Information and advice.
- Emotional and moral support.
- A listening ear.
- A regular meeting place.
- Activities such as a crèche for siblings or family days out.
Local groups vary in terms of the type of service they offer and can be open to parents and carers of children with any disability. Others are for parents whose children have the same condition.
Finding a local support group
If your local area has a Carers Centre, they might be able to put you in touch with a local support group. You can search for a local Carers Centre on the Carers UK website.
If you live in England, your local authority's "local offer" might list details of local support groups. Visit your local authority's website to find their local offer.
Alternatively, you can get in contact with our helpline and we can help you find a group in your area.
You may feel you want to join a group for parents whose children have the same condition as yours. If there is no condition specific group then do not rule out joining a group for all disabilities. Parents can offer friendship and emotional support regardless of their child's condition.
How we support local groups
Whether you're setting up a new support group or already running one, we have a range of resources to help, and can give you guidance on how to run your group.
Our Group Action Pack is packed with tips and sources of specialist advice for parent support groups.
The Group Action Pack covers issues ranging from how to start a group and hold meetings to charity registation, publicity and fundraising.
You will find these guides in our Group Action Pack:
- Starting a parent support group
- How to spread the word about your support group
- Keeping your group going
- Funding and fundraising for local parent support groups
- Holding a family day
- Public speaking for parents
- Legal structures for support groups
- The role of trustees
- The role of the medical adviser