Give It Back from the Disabled Children's Partnership
The Disabled Children's Partnership (DCP), in partnership with the Sun newspaper, is asking the Government to give back the £434 million shortfall in funding for social care for disabled children and their families.
Parent carer Vickey has written to the Chancellor asking him to Give it Back. Add you name to her letter: https://secure.mencap.org.uk/en-gb/give-it-back
As part of our Give it Back campaign, we have produce a powerful film that highlights harsh reality for families when they don't have the right support in place.
Please watch the film.
The DCP asked parents how this lack of support affecting their lives. More than 3,400 parents completed the survey. The shocking results reveal the full impact that a lack of services have on families with disabled children:
- Only 4 per cent of parent carers feel they get the right support to safely care for their disabled children.
- A third (33 per cent) of parent carers say their disabled child has been in unnecessary extra pain because the right equipment, doctor or health service hasn't been available.
- More than a third (37 per cent) of parent carers say their disabled child has missed school or college because the staff or services are not available to support them.
- More than half (54 per cent) of parent carers have been treated by a GP for depression, anxiety or stress (including suicidal thoughts).
- 53 per cent of parent carers have been forced to give up a paid job to care for their disabled child.
- 40 per cent of parent carers have experienced relationship breakdown with a partner since diagnosis. 64% of those say a lack of support had a major impact on the breakdown of a relationship.
Vickey receives no support caring for her son, Ollie, even though he has an ultra-rare condition that means he needs constant supervision and can never be left alone.
She has written a letter to the Chancellor of the Exchequer asking him to give back the £434million owed to disabled children and their families in social care support and provision. You can help by adding your name to her letter: https://secure.mencap.org.uk/en-gb/give-it-back
More about the DCP
Our CEO Amanda Batten is proud to chair the Disabled Children's Partnership (DCP), a growing coalition of more than 60 charities. We launched the Secret Life of Us campaign to raise awareness of the challenges families with disabled children face that most people of simply unaware of.
We have now launched our five step plan, which sets out how the government must act to addressing the growing crisis in health and social care for disabled children and their families.
The five steps
Step 1: Make disabled children a priority
Provide ministerial leadership to ensure a cross-departmental approach to improving outcomes for disabled children and their families.
Step 2: Review current funding
Review funding of short breaks provision for disabled children and families.
Step 3: Clarify existing rights
Clarify current rights and entitlements by co-producing with families guidance for local agencies on their existing statutory obligations.
Step 4: Create a Fund
Improve health and social care services for disabled children by providing an early intervention and family resilience fund.
Step 5: Change the system
Review of health and social care law, to strengthen and clarify rights and entitlements for disabled children and their families.
How you can help
You can take action on the second step right now!
More about the Secret Life of US campaign
We know that 43 per cent of the British public don't know anyone who is disabled. 97 per cent of parents with a disabled children do not believe the public understands the challenges they face every day.
Our campaign, the Secret Life of Us, aims to change this.
Watch our film on Toby's and Millie's Secret Life.
Read about the Secret Life of Rishi.
By doing this, we hope to open the eyes of the public to the difficulties faced by families on a day-to-day basis, removing the barriers to people being able to relate to the lives of disabled children.
Through this, we can create greater understanding, affinity and empathy for affected families.
Because without awareness and understanding, we cannot achieve real change.
But, with increased awareness and public support we can make a real difference.
Who's in the DCP?
Members Steering Group
- Action for Children
- Contact (Chair)
- Royal Mencap Society (Secretariat)
- National Autistic Society
- National Children's Bureau
- The Children's Trust
- The Family Fund
- Together for Short Lives
- Well Child
- British Healthcare Trades Association
- Carers UK
- Whizz Kids
For the full list, visit the Disabled Children's Partnership website.