We’re dreaming big – watch our video to find out more! We’ve partnered with leading sports charity for disabled people, Disability Sports Coach (DSC), to make this video as part of our joint application to the People’s Postcode Lottery Dream Fund....
Developmental Dysplasia of the Hip Also known as: Congenital Dysplasia of the Hip Background Most babies’ hips are entirely normal at birth. Sometimes, however, they do not develop properly. The hip joint is like a...
Energy bills set to rise in April will disproportionately affect families with disabled children The energy price cap which most families’ bills are now based on is predicted to go up by 50% in April. Ofgem is due to unveil the price cap rise...
Medicating children for mood and behaviour: get advice at our Facebook Live Children who are autistic or have a learning disability are more likely to be given psychiatric medication to regulate their behaviour or mood, but parent carers often worry about whether...
Top Xmas tips from our Listening Ear team Christmas can bring about a variety of emotions. While many people look forward to it with excitement and joy, for families of disabled children it can be a tricky time...
Epilepsy syndromes in Childhood Background The epilepsies are a group of conditions in which people are prone to have attacks (epileptic seizures or fits). A seizure is caused by a burst of excess electrical...
Families with disabled children experiencing high social isolation during lockdown New research from the Disabled Children’s Partnership (DCP) has shown that disabled children, their siblings, and parents are all experiencing extremely high levels of social isolation in comparison to the...
Familial Hypercholesterolaemia Background Familial hypercholesterolaemia (FH) is an inherited condition causing excess cholesterol in the blood. Cholesterol comes from the food we eat, but it is also made in our liver. Cholesterol...
Children and young people to be removed from UK shielding patient list The government has begun sending letters to families of children previously considered clinically extremely vulnerable (CEV), confirming that they will be removed from the list of shielding patients. This follows...
Contact first: Research grant awarded to investigate what deters under-represented communities from accessing health care services Contact, working in partnership with Alder Hey Children’s Trust, Edge Hill University and the North West National Network of Parent Carer forums ( NW NNPCF), have successfully secured a grant...
How parent carer forums have risen to the challenge during the pandemic Local parent carer forums and the National Network of Parent Carer Forums (NNPCF) – the independent national voice of parent carer forums – have done some incredible work during the...
Fetal Alcohol Spectrum disorders Also known as: Fetal Alcohol Effects; Fetal Alcohol syndrome Background Fetal Alcohol Spectrum Disorders (FASD) is a diagnosis which describes a range of features from the severe end of the...
Mum Samantha reacts to Spring Budget 2024 Today, Chancellor Jeremy Hunt set out the government’s plans for the country’s finances in the Spring Budget. But there was very little announced that will help families with disabled children...
MPs call for urgent reform of NHS dentistry including for disabled children A damning parliamentary report has called on the government to take urgent action to end the ‘crisis in access’ in NHS dentistry. Children, especially those with complex needs, SEND and...
Help paying for wheelchairs, home adaptations and more: Your top 5 questions answered Our recent Facebook Q&A session about grants, discounts and other sources of financial support for families was a big hit, with more than 45 parent carers joining in to ask...
School exclusions and SEN: Get expert advice at our Q&A for families in England Schools must follow certain procedures before making a decision to suspend or exclude a disabled child, such as increasing their SEN support or considering alternative disciplinary measures. Similarly, local authorities...
NEW Virtual workshop for practitioners this February – Supporting Children with Anxiety Book your place on our latest virtual workshop for practitioners happening on Thursday 23 February, 7-9pm, and find out more about the causes of anxiety in children and strategies to...