Dystonia

If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can also browse our range of parent guides on aspects of caring for a disabled child in our resource library.

To meet other parents see support groups below or meet other parents online in our closed Facebook group.

Please see below for reliable medical information on Dystonia produced by alternative providers.

NHS website
www.nhs.uk/conditions

Although alternative links have been selected with great care, Contact cannot accept responsibility for any inaccuracies or errors. Alternative information providers give details of their quality control procedures on their website, which includes review of information by a qualified medical professional.

Is there support?

Dystonia UK (The Dystonia Society)

Tel: 020 7793 3651
Email: [email protected]
Website: dystonia.org.uk

Dystonia UK is a National Registered Charity No. 1062595. It provides information, support and advocacy for anyone affected by dystonia. They runs support groups and information events across the UK.

Group details last reviewed June 2025.