Shape government’s plans for six major health conditions

2 mins read

Wednesday 14 June 2023

Tags: rare conditions, mental health, call for evidence, health conditions, medical, Down syndrome

Do you want to have your say on what the government includes in its major conditions strategy?

Ministers have issued a call for evidence to help them decided what to include in the strategy, which will set out plans and priorities for prevention, diagnosis, treatment and management across all six health conditions. These are:

  • Chronic lung conditions/respiratory disease.
  • Cancers.
  • Heart conditions.
  • Mental health.
  • Dementia.
  • Musculoskeletal conditions.

We want to make sure this all-important strategy includes disabled children’s needs, as well as adults’, by collecting parents’ views on what should be included.

If you’d like to take part in a focussed discussion about what the strategy should include and contribute to our response, please email [email protected]

We are especially keen to hear from parents of children with multiple health conditions, including:

  • Parent/s of child with complex /multiple medical needs.
  • Parent/s of child with a rare condition.
  • Parent/s of a child with a life limiting condition.
  • Parent/s of a child with Down syndrome and related medical needs.
  • Parent/s of a child with Cerebral Palsy.
  • Parent/s of a child with Muscular Dystrophy.
  • Parent/s of a child with Ehlers Danlos Syndrome.
  • Parent/s of a child with a learning disability and or/autism who has mental health needs.
  • Parent/s of a child with Ehlers Danlos Syndrome.

If you would like to respond individually, you can provide your evidence here. The call for evidence closes on Tuesday 27 June.