Sharing rare resources
1 min read
Wednesday 16 July 2025
As part of our Rare Conditions Network, which was set up thanks to funding from the Pears Foundation, we are now excited to start sharing some of the new resources that have been created.
These resources have been created by rare groups themselves, for other groups to use or take inspiration from. Resources include packs for schools, activity packs, videos and information for Dads, and a transition tool to support young people with rare conditions.
Check out our Rare Conditions Network Toolkit
We also want to remind you of our online Rare Conditions Network Toolkit packed with information to help you run your support group. We’ve got lots of information on managing volunteers including advice on volunteer management, key policies and training.
We’ve also got a social media presentation on how to engage with families of children with rare conditions online.
Access our toolkit online and look out for more guides and resources coming soon.
Sign up to join our Rare Conditions Network today.
