Book your place at our conference on rare diseases in Northern Ireland

1 min read

Thursday 14 December 2023

Tags: rare conditions, rare diseases, rare support groups

This January, our team in Northern Ireland is bringing families and practitioners together for a free half-day conference for the rare community.

“Supporting Children and Families living with Rare Diseases in Northern Ireland” takes place on 24 January in Dungannon, 9.30am to 1.30pm. Contact Northern Ireland is running the event in collaboration with the NI Rare Disease Partnership and the Pears Foundation.

For parent carers, this will be your opportunity to connect with other families, share experiences and hear from professionals working in the field. You’ll find out more about the support and resources available.

Sessions will include parent/practitioner forums, a talk from a Rare Disease Nurse, and a keynote presentation from Claire O’Hanlon MBE about her lived experience as a parent carer. Interactive group discussions will look at what services are doing well and what could be done better. And we’ll explore how everyone in the rare disease community can work together to improve the experiences of families. Lunch will also be provided at the end of the morning.
For more information and to book a place, visit our Eventbrite page.