The government has published an independent review into the prevalence of and support for mental health conditions, ADHD and autism, led by Professor Peter Fonagy.
Despite headlines in the press, the review found that there is no overdiagnosis of these conditions. Instead, it found that the system is overwhelmed and this is impacting children and young people negatively. It calls for a different approach, with support available earlier rather than families having to wait for a formal diagnosis before getting help.
Support before diagnosis is crucial
Contact’s CEO, Anna Bird says:
“We hope that this review will remove questions about the very real needs of children with ADHD, autism and mental health conditions. Rising demand is not a sign of “overdiagnosis”. It is a sign that many children and young people have gone without support for too long.
“At Contact, we see the impact that waiting for a child’s ADHD, autism or mental health assessment can have on the whole family. Contact’s Ealing team has been doing pioneering work to support parents of children aged 0–18 who are waiting for a neurodevelopmental disorder (NDD) assessment. The service helps parents access support and advice while they wait, sometimes up to three years, during what can be an isolating and difficult time.
“97% of families supported by our service reported that it helped them support their child better, improved family dynamics and their own wellbeing.”
Prevalence of autism, ADHD and mental health conditions
The review found a significant rise in the number of young people with anxiety and depression. It says this is due to social media and financial instability.
The system is catching up with historically low rates of diagnosis for autism, particularly in girls. And more awareness of autism and ADHD has led to people seeking answers and assessment.
Unregulated private providers
The review also found that families are turning to unregulated private providers for diagnosis. This is due to NHS delays and because it is often the only guaranteed way to unlock support in schools and care.
The review calls for national standards to be applied across the sector.
Government response
In response to the review, the government has said it is committed to a major overhaul of mental health support in the forthcoming Mental Health Strategy.
They have said that this will set out a renewed focus on prevention and early intervention, to make sure that people receive the right help, at the right time, in the right place, based on their needs.
Need support?
If you are waiting for diagnosis for your child, Contact can help. We have lots of advice and information on our website, or you can get in touch with our helpline.