Also known as: Behcet’s disease Background If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can also browse our range of parent guides on aspects of caring for a disabled child in our resource library. To meet other parents see support groups below or meet other parents online in our private Facebook group. Please see below for reliable medical information on Behcet’s syndrome produced by alternative providers. NHS websitewww.nhs.uk/conditions Although alternative links have been selected with great care, Contact cannot accept responsibility for any inaccuracies or errors. Alternative information providers give details of their quality control procedures on their website, which includes review of information by a qualified medical professional. Is there support? Behcet’s UK Tel: 0345 130 7329Email: [email protected]Website: https://behcetsuk.org/ Behcet’s UK are a Registered Charity in England and Wales no. 326679. They aim to secure the best care for all Behcet’s patients and assist their friends, families and carers. They provide information and advice including information about supporting children with Behcet’s sydrome. They also promote research into the cause, effects, treatments and management of the condition. Group details last reviewed September 2023.
Is there support? Behcet’s UK Tel: 0345 130 7329Email: [email protected]Website: https://behcetsuk.org/ Behcet’s UK are a Registered Charity in England and Wales no. 326679. They aim to secure the best care for all Behcet’s patients and assist their friends, families and carers. They provide information and advice including information about supporting children with Behcet’s sydrome. They also promote research into the cause, effects, treatments and management of the condition. Group details last reviewed September 2023.
Is there support? Behcet’s UK Tel: 0345 130 7329Email: [email protected]Website: https://behcetsuk.org/ Behcet’s UK are a Registered Charity in England and Wales no. 326679. They aim to secure the best care for all Behcet’s patients and assist their friends, families and carers. They provide information and advice including information about supporting children with Behcet’s sydrome. They also promote research into the cause, effects, treatments and management of the condition. Group details last reviewed September 2023.
Background Bronchopulmonary dysplasia (BPD) is a condition which now principally occurs in babies born before 30 weeks’ gestation (time in the womb), being more commonly observed in the most immature of these babies. Credits Medical text written November 1991 by Contact a Family. Approved November 1991 by Professor M Patton, Professor of Medical Genetics, St George’s Hospital Medical School, London, UK and Dr J E Wraith. Consultant Paediatrician, Royal Manchester Children’s Hospital, Manchester, UK. Last updated October 2010 by Dr R Rivers, Consultant Neonatologist (Emeritus), Imperial College Healthcare Trust, St Mary’s Hospital, London. What are the causes? BPD is thought to reflect an imbalance between factors promoting inflammation in the very immature lungs and the factors that are designed to inhibit excessive inflammation. The healing and repair that follows the inflammation is also poorly organised so that the lungs do not always grow normally afterwards. Factors which predispose these babies to develop BPD include exposure to infections in the womb before birth, the need for breathing support from a ventilator and for oxygen supplementation in the air they are being given after birth. How is it treated? There may be a continuing need for the baby to have some form of breathing support. The amount of added oxygen they are receiving at the age of 28 days and, if still needed, when they reach the equivalent of 36 weeks’ gestation, are used to define the severity of the BPD. The need for additional oxygen may persist for some weeks or even months, with a few babies actually going home on oxygen therapy. Babies who have been affected by the more severe forms of BPD are more prone to wheezing episodes requiring medication and some may require later re-hospitalisation for breathing difficulties. Viral infections during the first years of life are often triggers for wheezing episodes and those babies who are receiving additional oxygen at home may be offered a series of injections of specific antibody to give them some protection against one of these viruses, the human respiratory syncytial virus, during their first winter at home. Inheritance patterns and prenatal diagnosis Inheritance patternsAny genetic predisposition to BPD development is likely to involve several gene interactions in the pro-inflammatory, inhibitory and repair pathways in the lung along with genes affecting the types of chemicals produced to stabilise lung aeration and help in the fight against infections. These components of inheritance interact with the complex environmental factors mentioned above and, as yet, no distinct inherited gene patterns predisposing to BPD in the human baby have been identified. Prenatal diagnosisNot applicable for this condition. Is there support? Information and support in the UK for bronchopulmonary dysplasia is available from BLISS – the premature baby society (see entry Prematurity and Sick Newborn).
What are the causes? BPD is thought to reflect an imbalance between factors promoting inflammation in the very immature lungs and the factors that are designed to inhibit excessive inflammation. The healing and repair that follows the inflammation is also poorly organised so that the lungs do not always grow normally afterwards. Factors which predispose these babies to develop BPD include exposure to infections in the womb before birth, the need for breathing support from a ventilator and for oxygen supplementation in the air they are being given after birth. How is it treated? There may be a continuing need for the baby to have some form of breathing support. The amount of added oxygen they are receiving at the age of 28 days and, if still needed, when they reach the equivalent of 36 weeks’ gestation, are used to define the severity of the BPD. The need for additional oxygen may persist for some weeks or even months, with a few babies actually going home on oxygen therapy. Babies who have been affected by the more severe forms of BPD are more prone to wheezing episodes requiring medication and some may require later re-hospitalisation for breathing difficulties. Viral infections during the first years of life are often triggers for wheezing episodes and those babies who are receiving additional oxygen at home may be offered a series of injections of specific antibody to give them some protection against one of these viruses, the human respiratory syncytial virus, during their first winter at home. Inheritance patterns and prenatal diagnosis Inheritance patternsAny genetic predisposition to BPD development is likely to involve several gene interactions in the pro-inflammatory, inhibitory and repair pathways in the lung along with genes affecting the types of chemicals produced to stabilise lung aeration and help in the fight against infections. These components of inheritance interact with the complex environmental factors mentioned above and, as yet, no distinct inherited gene patterns predisposing to BPD in the human baby have been identified. Prenatal diagnosisNot applicable for this condition. Is there support? Information and support in the UK for bronchopulmonary dysplasia is available from BLISS – the premature baby society (see entry Prematurity and Sick Newborn).
What are the causes? BPD is thought to reflect an imbalance between factors promoting inflammation in the very immature lungs and the factors that are designed to inhibit excessive inflammation. The healing and repair that follows the inflammation is also poorly organised so that the lungs do not always grow normally afterwards. Factors which predispose these babies to develop BPD include exposure to infections in the womb before birth, the need for breathing support from a ventilator and for oxygen supplementation in the air they are being given after birth.
How is it treated? There may be a continuing need for the baby to have some form of breathing support. The amount of added oxygen they are receiving at the age of 28 days and, if still needed, when they reach the equivalent of 36 weeks’ gestation, are used to define the severity of the BPD. The need for additional oxygen may persist for some weeks or even months, with a few babies actually going home on oxygen therapy. Babies who have been affected by the more severe forms of BPD are more prone to wheezing episodes requiring medication and some may require later re-hospitalisation for breathing difficulties. Viral infections during the first years of life are often triggers for wheezing episodes and those babies who are receiving additional oxygen at home may be offered a series of injections of specific antibody to give them some protection against one of these viruses, the human respiratory syncytial virus, during their first winter at home.
Inheritance patterns and prenatal diagnosis Inheritance patternsAny genetic predisposition to BPD development is likely to involve several gene interactions in the pro-inflammatory, inhibitory and repair pathways in the lung along with genes affecting the types of chemicals produced to stabilise lung aeration and help in the fight against infections. These components of inheritance interact with the complex environmental factors mentioned above and, as yet, no distinct inherited gene patterns predisposing to BPD in the human baby have been identified. Prenatal diagnosisNot applicable for this condition.
Is there support? Information and support in the UK for bronchopulmonary dysplasia is available from BLISS – the premature baby society (see entry Prematurity and Sick Newborn).
If your child is affected by a disability or medical condition we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can also browse our range of parent guides on aspects of caring for a disabled child in our resource library. To meet other parents see support groups below or meet other parents online in our closed Facebook group. Please see below for reliable medical information on Brain Tumours produced by alternative providers. NHS websitewww.nhs.uk/conditions Although alternative links have been selected with great care, Contact cannot accept responsibility for any inaccuracies or errors. Alternative information providers give details of their quality control procedures on their website, which includes review of information by a qualified medical professional. Is there support? The Brain Tumour Charity Tel: 0808 800 0004Email: [email protected]Website: thebraintumourcharity.org The Organisation is a Registered Charity in England and Wales No. 1150054 and in Scotland No. SC042096. It provides information and support to anyone affected by brain tumour, and funds scientific and clinical research. Group details last reviewed March 2024.
Is there support? The Brain Tumour Charity Tel: 0808 800 0004Email: [email protected]Website: thebraintumourcharity.org The Organisation is a Registered Charity in England and Wales No. 1150054 and in Scotland No. SC042096. It provides information and support to anyone affected by brain tumour, and funds scientific and clinical research. Group details last reviewed March 2024.
Is there support? The Brain Tumour Charity Tel: 0808 800 0004Email: [email protected]Website: thebraintumourcharity.org The Organisation is a Registered Charity in England and Wales No. 1150054 and in Scotland No. SC042096. It provides information and support to anyone affected by brain tumour, and funds scientific and clinical research. Group details last reviewed March 2024.
If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can also browse our range of parent guides on aspects of caring for a disabled child in our resource library. To meet other parents see support groups below or meet other parents online in our private Facebook group. You can search for specific conditons on our A-Z of Medical Conditions. Other UK sites with trusted health information: NHS websitewww.nhs.uk Patient UKwww.patient.co.uk Although alternative links have been selected with great care, Contact cannot accept responsibility for any inaccuracies or errors. Alternative information providers give details of their quality control procedures on their website, which includes review of information by a qualified medical professional. Is there support? Cerebra Helpline: 0800 328 1159Email: [email protected]Website: cerebra.org.uk Cerebra is a Registered Charity in England and Wales No. 1089812. It works to improve the lives of children with neurological and brain related conditions in England and Wales through research, education and direct support. Group details last reviewed December 2023. Child Brain Injury Trust (CBIT) Tel: 0303 303 2248Email: via website Website: childbraininjurytrust.org.uk The Trust is a Registered Charity in England and Wales No. 1113326. It provides information and support to children, young people, their families and professionals and helps them come to terms with acquired brain injury. The Trust’s services include Regional Child and Family Support Co-ordinators, grants and family events. Group details last reviewed December 2023. Headway Helpline: 0808 800 2244Email: [email protected]Website: headway.org.uk The Association is a Registered Charity in England and Wales No. 1025852. It provides information and support to brain injury survivors, their families and carers, as well as to professionals in the health and legal fields. The Association offers a wide range of services, including rehabilitation programmes, carer support, social re-integration, respite care and a network of groups and branches that provide physical, cognitive and social rehabilitation and support to individuals and families. Group details last reviewed December 2023. The Children’s Trust Tel: 01737 365 000Email: [email protected]Website: thechildrenstrust.org.uk The Trust is a Registered Charity in England and Wales No. 288018. It provides rehabilitation, education, therapy and care for children with brain injury at its specialist centre in Tadworth, supporting children and families from across the UK. The Trust also offers services in communities around the country and online support for parents. Group details last reviewed December 2023.
Is there support? Cerebra Helpline: 0800 328 1159Email: [email protected]Website: cerebra.org.uk Cerebra is a Registered Charity in England and Wales No. 1089812. It works to improve the lives of children with neurological and brain related conditions in England and Wales through research, education and direct support. Group details last reviewed December 2023. Child Brain Injury Trust (CBIT) Tel: 0303 303 2248Email: via website Website: childbraininjurytrust.org.uk The Trust is a Registered Charity in England and Wales No. 1113326. It provides information and support to children, young people, their families and professionals and helps them come to terms with acquired brain injury. The Trust’s services include Regional Child and Family Support Co-ordinators, grants and family events. Group details last reviewed December 2023. Headway Helpline: 0808 800 2244Email: [email protected]Website: headway.org.uk The Association is a Registered Charity in England and Wales No. 1025852. It provides information and support to brain injury survivors, their families and carers, as well as to professionals in the health and legal fields. The Association offers a wide range of services, including rehabilitation programmes, carer support, social re-integration, respite care and a network of groups and branches that provide physical, cognitive and social rehabilitation and support to individuals and families. Group details last reviewed December 2023. The Children’s Trust Tel: 01737 365 000Email: [email protected]Website: thechildrenstrust.org.uk The Trust is a Registered Charity in England and Wales No. 288018. It provides rehabilitation, education, therapy and care for children with brain injury at its specialist centre in Tadworth, supporting children and families from across the UK. The Trust also offers services in communities around the country and online support for parents. Group details last reviewed December 2023.
Is there support? Cerebra Helpline: 0800 328 1159Email: [email protected]Website: cerebra.org.uk Cerebra is a Registered Charity in England and Wales No. 1089812. It works to improve the lives of children with neurological and brain related conditions in England and Wales through research, education and direct support. Group details last reviewed December 2023. Child Brain Injury Trust (CBIT) Tel: 0303 303 2248Email: via website Website: childbraininjurytrust.org.uk The Trust is a Registered Charity in England and Wales No. 1113326. It provides information and support to children, young people, their families and professionals and helps them come to terms with acquired brain injury. The Trust’s services include Regional Child and Family Support Co-ordinators, grants and family events. Group details last reviewed December 2023. Headway Helpline: 0808 800 2244Email: [email protected]Website: headway.org.uk The Association is a Registered Charity in England and Wales No. 1025852. It provides information and support to brain injury survivors, their families and carers, as well as to professionals in the health and legal fields. The Association offers a wide range of services, including rehabilitation programmes, carer support, social re-integration, respite care and a network of groups and branches that provide physical, cognitive and social rehabilitation and support to individuals and families. Group details last reviewed December 2023. The Children’s Trust Tel: 01737 365 000Email: [email protected]Website: thechildrenstrust.org.uk The Trust is a Registered Charity in England and Wales No. 288018. It provides rehabilitation, education, therapy and care for children with brain injury at its specialist centre in Tadworth, supporting children and families from across the UK. The Trust also offers services in communities around the country and online support for parents. Group details last reviewed December 2023.