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Support for people affected by Hypoxic Ischaemic Encephalopathy and their families

If your child is affected by a medical condition or disability, we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. We also offer emotional support for parents via our Listening Ear service.

We have a range of parent guides on aspects of caring for a disabled child in our resource library. You may also find our Early Years Support useful, which contains links to parent carer workshops and help for families going through the diagnosis process.

Please see below for reliable medical information on Hypoxic Ischaemic Encephalopathy produced by alternative providers.

PEEPS HIE support

peeps-hie.org

We’ve listed a support group below and you can also meet other parents online in our closed Facebook group.

PEEPS HIE support

Tel: 0800 987 5422
Email:  info@peeps-hie.org
Website: www.peeps-hie.org

PEEPS HIE are a small UK based national charity (Reg 1179495).  They support anyone within the UK affected by a Hypoxic Ischaemic Encephalopathy event (H.I.E event) – lack of oxygen to the brain, normally at birth but can occur in older children, regardless of or cause or outcome. 

They offer free emotional, practical and financial support to anyone affected by H.I.E in the form of counselling, peer support, parent packs, equipment funds and various other means as listed on their website.

They offer opportunities for families to meet together in their PEEPS together events, which offers support and the ability to share experiences with other H.I.E families.

You can also get in touch with them on Facebook, Instagram, X and LinkedIn).  In addition there is a closed H.I.E family WhatsApp group.

Group details added April 2024.

Background

If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can also browse our range of parent guides on aspects of caring for a disabled child in our resource library.

To meet other parents see support groups below or meet other parents online in our closed Facebook group

Please see below for reliable medical information on Homocystinuria produced by alternative providers.

NHS website
www.nhs.uk/conditions

Although alternative links have been selected with great care, Contact cannot accept responsibility for any inaccuracies or errors. Alternative information providers give details of their quality control procedures on their website, which includes review of information by a qualified medical professional.

Is there support?

Information and support in the UK for metabolic diseases is provided by Metabolic Support UK (see entry Inherited Metabolic diseases)

For more information about hemiplegia visit our hemiplegia section.

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