Want to help us improve our HemiHelp information, support and advice services?

3 mins read

Wednesday 25 May 2022

Tags: hemiplegia, HemiHelp

Would you like to hear more about our plans for the year ahead for families living with hemiplegia? Share your views with us and you’ll help us improve our information and advice services for you and other families like yours.

We’re looking for 10 parent carers who care for a child or young person aged 0-18 with hemiplegia to join an online focus group on 9 June where together we’ll review some of our key information about hemiplegia.

By joining us you’ll be helping us make sure we’re supporting our HemiHelp families with the advice and information they need and want. As a parent with a child with hemiplegia, your involvement in this focus group will help us to create content for our website, newsletters and our social media channels that better supports you and other families like yours.

When is it taking place?

The session will take place on Thursday 9 June from 10:00 to 12:00, via Zoom. We’ll provide details on how to join in advance of the session.

Who we are looking for and how to apply

Please consider joining us if you are a parent carer of a child or young person aged 0-18 with hemiplegia. You can apply to join the focus group by filling in this application form.

We want to ensure the focus group includes participants with range of experience and backgrounds including gender, ethnicity, and geographical location. If you have previously provided us with this information (for example if you were a member of our previous survey panel), then this may be used to ensure the group is representative.

What will I do?

  • We’ll send you some information beforehand, which we’d like you to read before the session. 
  • At the session, we’d like you to share your views and opinions on what you’ve read and heard and on how you like to access information relating to your family’s needs. 
  • Participants will be paid for their time if they wish. 

What if I’m not selected for the focus group but still want to share my views?

Throughout the year we run surveys about our information and advice services and we’d love you to take part. You can find out more about our surveys through our newsletters and joining our Facebook group.