Chronic Fatigue syndrome/Myalgic Encephalomyelitis

Also known as: CFS/ME; Chronic Fatigue and Immune Dysfunction syndrome; Epidemic Neuromyasthenia; Myalgic Encephalomyelitis; Myalgic Encephalopathy; Post-viral Fatigue syndrome

If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can also browse our range of parent guides on aspects of caring for a disabled child in our resource library.

To meet other parents see support groups below or meet other parents online in our closed Facebook group.

Please see below for reliable medical information on Chronic Fatigue syndrome/Myalgic Encephalomyelitis produced by alternative providers.

NHS website
www.nhs.uk/conditions

Although alternative links have been selected with great care, Contact  cannot accept responsibility for any inaccuracies or errors. Alternative information providers give details of their quality control procedures on their website, which includes review of information by a qualified medical professional.

Is there support?

Action for M.E.

Tel: 0117 927 9551
Email: [email protected]
Website: actionforme.org.uk

Action for M.E. is a Registered Charity in England and Wales No. 1036419. It provides information and support for people affected by myalgic encephalomyelitis (M.E.), sometimes diagnosed as chronic fatigue syndrome (CFS, or M.E./CFS), and their carers. 

Group details last reviewed March 2025.

ME Association

Helpline: 0808 801 0484
Website: meassociation.org.uk

The Association is a Registered Charity in England and Wales No. 801279. It provides information and support to people in the UK with ME (myalgic encephalopathy) or CFS (chronic fatigue syndrome) and their families and carers. The Association funds and supports research, and provides education and training.

Group details last updated March 2025.

The Young ME Sufferers Trust

Email: via website
Website: tymestrust.org

The Trust is a Registered Charity in England and Wales No. 1080985. It provides information and support for children and young people with ME and their families and professionals.

Group details last updated March 2025.

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