Cystic Fibrosis

If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can also browse our range of parent guides on aspects of caring for a disabled child in our resource library.

To meet other parents see support groups below or meet other parents online in our closed Facebook group.

Please see below for reliable medical information on Cystic Fibrosis produced by alternative providers.

NHS website

Although alternative links have been selected with great care, Contact cannot accept responsibility for any inaccuracies or errors. Alternative information providers give details of their quality control procedures on their website, which includes review of information by a qualified medical professional.

Is there support?

The Butterfly Trust

Tel: 0131 445 5590

The Trust is a Registered Charity in Scotland No. SC033174.  It provides support to people affected by Cystic Fibrosis (CF) throughout Scotland. 

Group details last reviewed March 2023.

Cystic Fibrosis Trust

Helpline: 0300 373 1000

The Trust is a Registered Charity in England and Wales No. 1079049. It provides information and support to anyone affected by Cystic Fibrosis, and offers a range of grants for people with Cystic Fibrosis and their families.

Group details last reviewed March 2023.

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