Ehlers-Danlos syndrome

Also known as: Arthrochalais-Multiplex Congenita; Cutis Hyperelastica

If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can also browse our range of parent guides on aspects of caring for a disabled child in our resource library.

To meet other parents see support groups below or meet other parents online in our closed Facebook group

Please see below for reliable medical information on Ehlers-Danlos syndrome produced by alternative providers.

NHS website
www.nhs.uk/conditions

Although alternative links have been selected with great care, Contact  cannot accept responsibility for any inaccuracies or errors. Alternative information providers give details of their quality control procedures on their website, which includes review of information by a qualified medical professional.

Is there support?

Ehlers-Danlos Support UK

Helpline: 0800 907 8518
Email: helpline@ehlers-danlos.org
Website: ehlers-danlos.org

The Organisation is a Registered Charity in England and Wales No. 1157027. It provides information and support for anyone affected by Ehlers-Danlos Syndrome, and runs regular events and conferences.

Group details last reviewed March 2023.