Haemophilia, von Willebrand disease and other Coagulation Defects

If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can also browse our range of parent guides on aspects of caring for a disabled child in our resource library.

To meet other parents see support groups below or meet other parents online in our closed Facebook group

Please see below for reliable medical information produced by alternative providers on haemophilia.

NHS website

Although alternative links have been selected with great care, Contact  cannot accept responsibility for any inaccuracies or errors. Alternative information providers give details of their quality control procedures on their website, which includes review of information by a qualified medical professional.

Is there support?

Haemophilia Society

Helpline: 020 7939 0780
Email: info@haemophilia.org.uk
Website: haemophilia.org.uk

The Society is a Registered Charity in England and Wales No. 288260. It provides information and support to anyone affected by a bleeding disorder. The Society offers a range of services for children, including activity weekends. 

Group details last reviewed March 2023.

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