Is there support? There is no support group for Larsen syndrome in the UK. Cross referrals to other entries are intended to provide relevant support for those particular features of the disorder. Organisations identified in those entries do not provide support specifically for Larsen syndrome. Families can use Contact’s freephone helpline for advice, information and, where possible, links to other families. To meet other families with disabled children, join Contact’s closed (private) Facebook group.