Is there support? There is no support group for Leber’s congenital amaurosis in the UK. Cross referrals to other medical inforrmation entrieson our website are intended to provide relevant support for those particular features of the disorder. Organisations identified in those entries do not provide support specifically for Leber’s congenital amaurosis. Families can use Contact’s freephone helpline for advice, information and, where possible, links to other families. To meet other families with disabled children, join Contact’s closed (private) Facebook group.