Is there support? Alfie Milne Lymphangiomatosis Trust Tel: 01224 735038 or 07765 408101Email: email@example.comWebsite: alfiemilne.org.uk The Trust is a Registered Charity in Scotland No. SC043165. The trust offers information and support for patients and families with Lymphangiomataosis or Gorham’s disease. They aim to raise awareness of the conditions, promote opportunities for research and to educate medical professionals, patients and family members about the conditions. The Trust also offers a quarterly newsletter, closed Facebook groups and links with partner organisations in Europe and the USA. Group details reviewed September 2021.