Also known as: Generalised lymphatic anomaly; GLA


If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can also browse our range of parent guides on aspects of caring for a disabled child in our resource library.

To meet other parents see support groups below or meet other parents online in our closed Facebook group

Please see below for reliable medical information on Lymphangiomatosis published by Great Ormond Street Hospital.

Great Ormond Street Hospital

Although alternative links have been selected with great care, Contact cannot accept responsibility for any inaccuracies or errors.  Any medical information is provided for education/information purposes and is not designed to replace medical advice by a qualified medical professional.

Is there support?

Alfie Milne Lymphangiomatosis Trust

Tel: 01224 735038 or 07765 408101

The Trust is a Registered Charity in Scotland No. SC043165. The trust offers information and support for patients and families with Lymphangiomataosis or Gorham’s disease. They aim to raise awareness of the conditions, promote opportunities for research and to educate medical professionals, patients and family members about the conditions. The Trust also offers a quarterly newsletter, closed Facebook groups and links with partner organisations in Europe and the USA.

Group details reviewed September 2021.

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