If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can also browse our range of parent guides on aspects of caring for a disabled child in our resource library.

To meet other parents see support groups below or meet other parents online in our closed Facebook group

Please see below for reliable medical information on Mastocytosis produced by alternative providers.

NHS website

Although alternative links have been selected with great care, Contact cannot accept responsibility for any inaccuracies or errors. Alternative information providers give details of their quality control procedures on their website, which includes review of information by a qualified medical professional.

Is there support?

UK Mastocytosis Support Group


The Group is a Registered Charity in England and Wales No. 1154007. It provides information and support to individuals and families affected by mastocytosis and other mast cell related conditions. The Group holds regular meetings with speakers from the academic and medical professions.

Group details last reviewed June 2024.

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