Mucopolysaccharide diseases and Associated diseases

If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can also browse our range of parent guides on aspects of caring for a disabled child in our resource library.

To meet other parents see support groups below or meet other parent online in our closed Facebook group

You can search for specific Mucopolysaccharide diseases in our A-Z of Medical Conditions.

Other UK sites with trusted health information:

NHS website

Patient UK

Although alternative links have been selected with great care, Contact cannot accept responsibility for any inaccuracies or errors. Alternative information providers give details of their quality control procedures on their website, which includes review of information by a qualified medical professional.

Is there support?

Society for Mucopolysaccharide Diseases

Tel: 0345 389 9901

The Society is registered charity in England and Wales No. 1143472, and Scotland No. SC041012. It provides information and support to individuals and families affected by MPS, Fabry and related diseases. 

Group details last reviewed September 2023.

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