Myelodysplastic syndrome


If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can also browse our range of parent guides on aspects of caring for a disabled child in our resource library.

To meet other parents see support groups below or meet other parents online in our closed Facebook group

Please see below for reliable medical information on myelodysplastic syndrome produced by alternative providers.

NHS website

Although alternative links have been selected with great care, Contact cannot accept responsibility for any inaccuracies or errors. Alternative information providers give details of their quality control procedures on their website, which includes review of information by a qualified medical professional.

Is there support?

MDS UK Patient Support Group

Tel: 020 7733 7558

The MDS UK Paient Support Group is a Registered Charity in England and Wales no.1145214. The group provides support to all those affected by myelodysplastic syndromes. They provide information and advice, a network of support groups and a networking service. They also aim to raise awareness and organise patient information meetings.

Group details reviewed September 2023.

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