Nephrotic syndrome

If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can also browse our range of parent guides on aspects of caring for a disabled child in our resource library.

To meet other parents see support groups below or meet other parents online in our closed Facebook group

Please see below for reliable medical information on Nephrotic syndrome produced by alternative providers.

Patient UK
www.patient.info/health

Although alternative links have been selected with great care, Contact  cannot accept responsibility for any inaccuracies or errors. Alternative information providers give details of their quality control procedures on their website, which includes review of information by a qualified medical professional.

Is there support?

NeST – Nephrotic Syndrome Trust

Tel:  01935 706042
Email: [email protected]
Website: nstrust.co.uk

NeST is a Registered Charity in England and Wales no.1107601. They provide information and support to families and individuals affected by nephrotic syndrome. They aim to increase awareness of the condition and also fund research.

Group details reviewed June 2024.

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