Porphyria

If your child is affected by a disability or medical condition we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can also browse our range of parent guides on aspects of caring for a disabled child in our resource library.

To meet other parents see support groups below or meet other parents online in our closed Facebook group

Please see below for reliable medical information on Porphyria produced by alternative providers.

Patient UK
www.patient.info/health

Although alternative links have been selected with great care, Contact cannot accept responsibility for any inaccuracies or errors. Alternative information providers give details of their quality control procedures on their website, which includes review of information by a qualified medical professional.

Is there support?

British Porphyria Association

Helpline: 0300 30 200 30
Email: helpline@porphyria.org.uk
Website: porphyria.org.uk

The Association is a Registered Charity in England and Wales No 1089609. It provides information and support to families and individuals affected by porphyria. 

Group details last reviewed June 2023.