Restricted Growth

If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can also browse our range of parent guides on aspects of caring for a disabled child in our resource library.

To meet other parents see support groups below or meet other parents online in our closed Facebook group

You can search for a particular or specific condition in our online A-Z of Medical Information.

Other UK sites with trusted health information:

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Patient UK

Although alternative links have been selected with great care, Contact acannot accept responsibility for any inaccuracies or errors. Alternative information providers give details of their quality control procedures on their website, which includes review of information by a qualified medical professional.

Is there support?

Restricted Growth Association (RGA)

Tel: 0300 111 1970

The Association is a Registered Charity in England and Wales No. 261647. It provides information and support to people of restricted growth and their families. The Association provides a network for adults and children throughout the UK, and offers an annual national convention, youth trips, family outings and regional events.  

Group details last reviewed September 2023.

Child Growth Foundation

Tel: 0208 995 0257

The Child Growth Foundation (CGF) is a registered UK charity in England and Wales (charity number 1172807) that aims to improve the lives of children, adults and families wherever growth is a concern. Their support includes a Support Line available to anyone concerned about their child’s growth or with a diagnosis of a growth condition. The CGF also offer condition guides and fact sheets, a twice-yearly newsletter, an annual convention, peer support programme and private Facebook peer support groups. Conditions supported by the CGF include Silver-Russell syndrome, Hypopituitarism, Precocious Puberty, IUGR/SGA, PIGF 1 Deficiency, SHOX Deficiency, Growth Hormone Deficiency, Sotos syndrome, Weavers syndrome, Tatton-Brown-Rahman syndrome, and Smith Kingsmore syndrome.

Group details last updated December 2023.

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