Sickle Cell disorders

If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can also browse our range of parent guides on aspects of caring for a disabled child in our resource library.

To meet other parents see support groups below or meet other parents online in our closed Facebook group

Please see below for reliable medical information on Sickle Cell disorders produced by alternative providers.

NHS website

Although alternative links have been selected with great care, Contact cannot accept responsibility for any inaccuracies or errors. Alternative information providers give details of their quality control procedures on their website, which includes review of information by a qualified medical professional.

Is there support?

The Sickle Cell Society


The Society is a Registered Charity in England and Wales No. 1046631. It provides information and support to people affected by sickle cell disorders and their carers. The Society offers specialist services and welfare schemes for those affected by sickle cell disorders.

Group details last reviewed June 2023.

Sickle Cell and Young Stroke Survivors (SCYSS)

Tel: 0800 084 2809 or 0207 277 2777

SCYSS is a Registered Charity in England and Wales No. 1120902. It provides information and support for children, young people and their families affected by sickle cell anaemia and childhood stroke.

Group details last updated June2023.

The Hope Project Scotland

Tel: 07756 266691
Email: via website

The Hope Project Scotland are registered as a charity in Scotland SC047913. They support individuals and families in Scotland affected by Sickle Cell anaemia. Services offered include practical support, advocacy, peer support, workshops and recreation activities.

Group details added January 2024.

Back to A-Z Conditions