Spina Bifida

If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can also browse our range of parent guides on aspects of caring for a disabled child in our resource library.

To meet other parents see support groups below or meet other parents online in our closed Facebook group

Please see below for reliable medical information on Spina Bifida produced by alternative providers.

NHS website

Although alternative links have been selected with great care, Contact cannot accept responsibility for any inaccuracies or errors. Alternative information providers give details of their quality control procedures on their website, which includes review of information by a qualified medical professional.

Is there support?


Tel: 01733 555 988
Email: firstcontact@shinecharity.org.uk
Website: shinecharity.org.uk

The Association is a Registered Charity in England and Wales No. 249338. It provides information and support to individuals with hydrocephalus and/or spina bifida and their families and carers. It offers specialist services and has regional teams across England, Wales and Northern Ireland. 

Group details last reviewed June 2023

Spina Bifida Hydrocephalus Scotland

Helpline: 03455 211 300
Email: mail@sbhscotland.org.uk
Website: sbhscotland.org.uk

The Association is a Registered Charity in Scotland No. SC013328. It provides information and support to anyone affected by spina bifida, hydrocephalus and related conditions. They offer a Family Support Service which includes intensive support for families with new born babies. 

Group details reviewed September 2022.

Back to A-Z Conditions