Tuberous Sclerosis Complex

Also known as: Tuberous Sclerosis

If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can also browse our range of parent guides on aspects of caring for a disabled child in our resource library.

To meet other parents see support groups below or meet other parents online in our closed Facebook group.

Please see below for reliable medical information on Tuberous Sclerosis Complex produced by alternative providers.

NHS website

Although alternative links have been selected with great care, Contact cannot accept responsibility for any inaccuracies or errors. Alternative information providers cgive details of their quality control procedures on their website, which includes review of information by a qualified medical professional.

Is there support?

Tuberous Sclerosis Association UK

Tel: 0808 801 0700

The Association is a Registered Charity in England and Wales No. 1039549. It provides information and support to anyone affected by Tuberous Sclerosis Complex.

Group details last reviewed September 2023.

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