Is there support? SWAN UK Tel: 0300 124 0441Email: info@undiagnosed.org.ukWebsite: undiagnosed.org.uk SWAN UK (Syndromes Without A Name) is an initiative run by the charity Genetic Alliance UK to provide information and support to families of children with undiagnosed genetic conditions. It offers an online forum, family fun days and local meet ups, and works with healthcare and other professionals to highlight the challenges faced by families of children with undiagnosed genetic conditions. Group details last updated December 2022.
Is there support? SWAN UK Tel: 0300 124 0441Email: info@undiagnosed.org.ukWebsite: undiagnosed.org.uk SWAN UK (Syndromes Without A Name) is an initiative run by the charity Genetic Alliance UK to provide information and support to families of children with undiagnosed genetic conditions. It offers an online forum, family fun days and local meet ups, and works with healthcare and other professionals to highlight the challenges faced by families of children with undiagnosed genetic conditions. Group details last updated December 2022.