We conduct research and surveys to understand the scale of some of the issues faced by families.

Facts about families of disabled children and young people

Get involved in our research

We couldn’t conduct our research without thousands of parent carers sharing their experiences with us. If you’d like to find out about getting involved in our research, contact our campaigns manager Una Summerson at

Join one of our campaigns

We use our research to inform our campaign work, and in some cases our findings have led to changes in policy.

For example, our Stop the DLA Takeaway in Hospital report was used as evidence in the Mathieson case, in which taking away a young boy’s DLA while he was in hospital for a long time was found to be a breach of his human rights.

Find out more about getting involved in our campaign work.

Support our research work

We couldn’t carry out our research work without your vital support. If you’re able to, please consider making a one-off or monthly donation to help us identify the areas in which families with disabled children most need us.