Home Help for families Campaigns and research The Disabled Children’s Partnership
4 mins read
Together with other charities and parents, we are campaigning to make disabled children a priority with Government, for more funding and to improve in the law.
Thank you to our panel of more than 1000 parent carers who are helping track the impact of lockdown on disabled children in 2021.
The first in a series of reports, Longest Lockdown, found that the health of disabled children is suffering as they miss out on health checks and therapies.
In June 2020 we published shocking research which shows most families have been left in lockdown without any vital care or support.
Watch Amanda Batten, our CEO, and parent carers talk about the challenging of return to school on BBC Newsnight
Research with more than 3000 parent carers found only 4 per cent feel they get the right support to safely care for their disabled children.
We also commissioned economic research showing a £1.5 billion funding gap for services needed by disabled children.
That’s why in June 2019, in partnership with the Sun newspaper, we launch the Give it Back campaign calling on the Government to give back the £434 million of support owed to disabled children and their families.
More than 21,000 people signed an open letter to the Chancellor from parent carer Vickey, who receives no support caring for her son, Ollie, even though he has an ultra-rare condition that means he needs constant supervision and can never be left alone.
We have produced a powerful film that highlights the harsh reality for families when they don’t have the right support in place.
In response to pressure from families and charities, the government announced £700 million for children and young people with special educational needs and disabilities. It has also helped us:
We know that 43 per cent of the British public don’t know anyone who is disabled. 97 per cent of parents with a disabled children do not believe the public understands the challenges they face every day.
The Secret Life of Us campaign aims to change this.
Watch our film on Toby’s and Millie’s Secret Life.
Read about the Secret Life of Rishi.
By doing this, we hope to open the eyes of the public to the difficulties faced by families on a day-to-day basis, removing the barriers to people being able to relate to the lives of disabled children.
Our CEO Amanda Batten formed and now chairs the Disabled Children’s Partnership (DCP), a growing coalition of more than 80 charities. Our priorities for change are:
1: Make disabled children and their families a priority
The government should appoint a Minister for Disabled Children to champion disabled children’s rights and policy across all departments. With the role comes clear responsibility and accountability to make sure support and funding is in place. This arrangement should also be mirrored in local areas.
2: Clarify rights and review the law
The government must work with parents to improve guidance on the current system of support for disabled children – so that it is easier for them to know their rights – and introduce reforms to make the system simpler, and rights and responsibilities clearer across health, social care and education.
Improve health and social care services for disabled children by providing an early intervention and family resilience fund.
3: Address funding shortfalls and create an innovation fund
The government must plug the £1.5 billion funding gap across health and social care support for disabled children and introduce a new innovation fund. The fund would encourage and support new approaches to joining-up services and budgets with a clear focus on early intervention for the whole family.
Members Steering Group
For the full list, visit the Disabled Children’s Partnership website
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