Contact’s Rare Conditions Network
2 mins read
Thanks to funding from the Pears Foundation, we have established a Rare Conditions Network.
If you run a rare condition support group, join our network and get access to exclusive news, advice, events and development opportunities to help you support your families.
Our Rare Conditions Network brings rare condition support groups together to share ideas and expertise and strengthen group relationships.
In this article
About our network
We know how important support groups are to families – Contact itself started as a support group.
And rare condition support groups – which can be an invaluable source of condition-specific information and support – are very often a lifeline for families.
Our Rare Conditions Network brings these groups together to share ideas and expertise and strengthen group relationships.
Join our network
Do you run a rare condition support group? Or are you a rare condition support group member and looking for ways to develop the group?
Join our network today by subscribing to our regular newsletter.
Our regular updates include:
- Information about funding opportunities.
- Networking opportunities.
- Details of rare events.
- Updates from other rare condition support groups.
- Wider information, support and advice from Contact that could be of interest to the families you support.
Rare Conditions Network toolkit
We have created resources to support the charities who are part of our Rare Group Network.
This toolkit and the resources within it have been created to support the charities who are part of our Rare Group Network.
We hope this information provides you with answers to some of your queries about running small charities and gives you inspiration and ideas for new ways to do things and different areas to explore.
Resource topics
Managing volunteers
Resources to help you recruit and look after volunteers who help run your support group.
Social media
A presentation on how to engage with families of children with rare conditions online.
Group Action Pack
Our set of resources for local parent support groups.
Rare group resources
These resources have been created by rare groups themselves, for other groups to use or take ideas from.
