The Great North Run This iconic half marathon takes you from the centre of Newcastle, through Gateshead to the stunning coastline of South Shields. With a warm Newcastle welcome, a buzzing atmosphere and the...
School transport challenges continue as DfE delays revised guidance Parents are still struggling with issues surrounding their children’s school transport arrangements in England amid confirmation from the Department for Education (DfE) that revisions to the existing Home to School...
The Disabled Children’s Partnership The Disabled Children’s Partnership Together with 120 charities and thousands of parents, we are campaigning to make disabled children a priority. We want improvements to disabled children’s education, social care...
Norrie disease Background Norrie disease is a congenital (present from birth) genetically inherited eye condition that typically leads to blindness at birth or severe sight impairment. It is an X-linked recessive condition...
Putting things right – Northern Ireland If you have a complaint about some aspect of your child’s healthcare, you can raise it with the Complaints Manager at the Health and Social Care Trust responsible for the...
Congenital Muscular Dystrophy Background The congenital muscular dystrophies (CMDs) are a group of inherited muscle disorders that typically become apparent at birth or in early infancy and are characterised by floppiness, weak muscles...
Epidermolysis Bullosa Background Epidermolysis bullosa (EB) is the term used to describe a number of genetically determined disorders whose principal characteristic is skin and/or mucous membrane fragility (for example in the mouth...
Baroness Grey-Thompson backs free school meals campaign Baroness Tanni Grey-Thompson has used a written question to the Department for Education (DfE) to cite our research that a third of eligible disabled children are not able to access...
Support in education NI Support in education This advice applies in Northern Ireland only. Read information for families in England, Scotland or Wales. Here you can read about support in education for children with...
My hemiplegia makes me who I am “My hemiplegia makes me who I am” Thomas Roberts tell us more… 30-year-old Thomas Roberts lives in London with his wife Siena. He’s had hemiplegia since birth, which makes the...
Congenital and Acquired Brain Damage and Dysfunction in Childhood If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...
Osteogenesis imperfecta (brittle bone disease) Brittle bone disease or osteogenesis imperfecta (OI) is a genetic condition that causes abnormality in collagen protein that the body needs for bones as well as other structures such as...
Working with parent-carers Working with parent-carers Our accessible and jargon-free course gives practitioners practical ideas about how they can better support and work with disabled children and their families. It is not unusual...
Direct payments for disabled children’s social care: your top questions answered Last week’s Facebook Q&A about accessing direct payments for children’s social services in England was one of our most popular yet, with over 120 parent carers asking questions to our advisers. If...
Rubella Also known as: German measles If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information,...
Lymphangiomatosis Also known as: Generalised lymphatic anomaly; GLA Background If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555...
Guillain-Barré syndrome If your child is affected by a medical condition or disability we can help. Call our freephone helpline on 0808 808 3555 to get information, support and advice. You can...